Carer's Experience Medical Neglect

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New page July 2012.


On this page I list the books that I have read, having considered them as being relative to a carer; some of which are in my personal library. I also consider that there are many of them that are relevant to our sick society's detrimental effect upon carers. Those same non-values were those that were in the similarly sick society lived in especially by the characters depicted in Taylor Caldwell's books.

The first books listed are my own, and books are listed in alphabetical order of author surname. A common topic of them is the act of dying, but when one is a carer of an elderly parent, sibling and others of that age group, or anyone who has a very serious illness that is liable to be or certainly shall be terminal, then the fact of death is always at the back of one's mind. It is a subject that so many people tend to avoid and pretend that it is something that happens to others; while not contemplating their own mortality. It is one of the two poles of life as we think we know and understand it and I suspect that a fair number of the medical profession run a mile from openly confronting it and the emotions engendered by it.

When all of the medical tests reveal that the illness is irrefutably terminal, it is the time when Mr. DEATH sits on the edge of the bed "thumbing its nose" with the mindset of "Where is your power now? They're mine!".
To anyone who may think that mortality shall never be conquered, then I recommend the works of the academics referred to in Article 5, and all ongoing scientific research in medical and computer fields.

The funeral of Mr. DEATH lies ahead.

My books

The first three books tell of noted people in history who fought against evilness that polluted all values of common decency, uprightness and integrity. The values that they held to were, I feel sure, the same values that inspired the founders of Rome. Although I have yet to read the speeches of the Father of Rome, Cincinattus, the writing of this prompts me to go looking for them. The American city of Cincinatti is named in his honour. They were men, who in their simple togas and open sandles with good clean earth between their toes, from tilling the land and husbanding the cattle, went in to the Senate to debate the weighty matters of state. To those who pollute the legal profession of today by their twisting of words and their mental prostituting of morality just to win their case; those who hide behind them to cover up their failings; and even more so, those calling themselves politicians who I look upon as potentional and actual trash that would urinate and defecate in the face of an innocent dying baby in the hope for a vote; I refer them all to the speeches of those people of the past.

The American authoress, Taylor Caldwell, was of the Scots-American 'Caldwell' family. To be able to write these historical novels, she taught herself Latin. She applied for, and was granted permission, to view the various records/documents held in the Vatican Library, since she did not want to base her novels upon other peoples' possibly distorted and inaccurate reproductions. On the same principle, she also visited the St. Catherine monastery in the Sinai Desert.

(Author:Taylor Caldwell)
This novel is based upon the life of the Roman lawyer, Marcus Tullius Cicero, who fought against the vile corruption of venal politicians, and today's world is equally prostituted by the same spineless opportunist trash. These politicians were the enemies of the values instilled in Cicero as he was descended from the Old Romans who held to values of virtue. His speeches within the novel are soul stirring.

Dear and Glorious Physician
(Author:Taylor Caldwell)
In this historical novel, Lucanus (Greek), became the stepson of the Roman Governor Diodorus of Greek Antioch when his widowed mother in time married the Roman Diodorus who had lost his wife. The family of Lucanus was part of the Governor's household, but not classed as slaves. Lucanus became a noted Doctor of Medicine, and in history is known as St. Luke, although he never knew Rabbi Yehoshuah ben Iosef, nor was he one of the disciples. The speeches of his stepfather, again of the old school of Romans, are as stirring as Cicero's in their condemnation of the venality of the corrupt politicians.

(Author:Taylor Caldwell)
This novel is about St. Paul who referred to Lucanus as "Our most dear physician, Luke". Saul (St. Paul) lived at the time of the fall of Rome, which had the same catalysts as today:-
a permissive society; immorality; endless wars;
oppressive taxation; destruction of the middle classes;
cynical attitudes towards established human virtues, principles and ethics; venal politicians;
falling value in the monetary system, bribes, criminality, riots, street demonstrations;
criminals released onto the streets as carried out by the SNP in their contempt for the indigenous Scots Nation and their sister Nations in this UK, and they are not alone in that vile racism against the three nations;
public office scandals, plundering of the treasury, debt, injustice and exploitation tolerated;
bureaucratic issuing of evil orders; blatant contempt for good honourable people;
and the belief that there is no Superior Intellect and that these non-human items are supreme.

There is an old adage that history repeats itself, and that which goes around comes around. As always, in history evilness shall be hoist by its own petard. I am reminded of a man, who I once thought of as part of Roman mythology, but apparently he did exist. His name was Horace, and he stood at the gates of Rome and said to the barbarian "No, you shall not pass", and he did triumph.

One has to ask the begged question - "Will the prevaricators, prognosticators, and dissemblers who are at present soiling the values of society and the NHS look to their own gross failings and pull up upon their own bootstraps?".

TRUST ME (I'm a doctor)
(Authors: Dr. Phil Hammond & Michael Mosley)
A book that reveals the failings in the medical world. It states in the Introduction that the best reason for doctors to be regularly assessed was said by the late Dr. Tom Chalmers who was a champion of medical research. His words were, "If doctors died with their patients, they'd take a great deal more care".

(Author: Professor John Hinton)
Dr. Hinton, at the time of writing this original book, was a leading psychiatrist (thanatologist) in the specialist field of thanatology, which is the science of the dying process. We can accept it in an abstract manner, but at present each of us will have to face it personally; thus books like this are worthy of study.

TIME OF OUR LIVES - The Science of Human Ageing
(Author: Professor Tom Kirkwood)
This book was written by Professor Kirkwood, who is Britain's first biological gerontologist. It was written to be intelligible to a non-scientifically trained reader who has a wish to know. It also has a specific relationship to the subject of ageing and is relevant to policy makers.

(Author: Dr. Elisabeth Kübler-Ross)
This book is the first book of many written by Dr. Ross on this subject. It came out of a study in 1965 in Chicago, when Dr. Ross was approached by four theology students who asked for help in researching "human crisis". It was decided that they would talk to people who were in the act of the dying process and to let them be their teachers. I believe that Dr. Ross was the founder of the American Hospice Movement which was based on St. Christopher's Hospice, London.

Life Lessons - How our Mortality can Teach us About Life and Living
(Authors: Dr. Elisabeth Kübler-Ross & David Kessler)
In sharing their stories from their experiences of dealing with terminal patients, the authors write to guide us through life so that we can live it to the fullest. David Kessler is a Nurse Practitioner.

WHO DIES? - An Investigation of Conscious Living and Conscious Dying
(Author: Stephen Levine)
The author became the Director of the Hanuman Foundation Dying Project in the USA, which is a consultancy to hospitals and hospices on the subject of death. This book on the subject was described by Dr. Elisabeth Kübler-Ross as magic. It has a chapter titled the same as the book, namely "Who dies?". Stephen Levine starts it with an unattributed quote, and says that they may be the words of Sri Nisargadatta, but whoever said them, for myself they jumped out of the page at me and I have them embossed on my memory. On first reading them, I felt sure that there is a truth in them:-

"It is because you believe you are born that you fear death.
Who is it that was born? Who is it that dies?
Look within.
What was your face before you were born?
Who you are, in reality, was never born and never dies.
Let go of who you think you are and become who you have always been."

(Author: Doctor Sherwin B. Nuland)
This is possibly one of the few books that describe, in unsentimental terms, the various methods that take us off the premises. It is a totally human book in its explanation as to the exact process and its descriptions of that taking place at the time of our dying by whatever method. Dr. Nuland is honest in that he talks about his own failings as a human being and a doctor. It is a MUST read.

Books read, but not owned.

The Alzheimer's Sourcebook for Caregivers
(Author: Frena Gray-Davidson)
The author was born in England of Scots parentage. She emigrated to America and in time founded SHACTI (Self Help Alzheimer's Caregiving Training and Instruction). This book describes dementia in a forthright manner and is praised by many people in that it gives plenty of good advice to carers. I feel sure that carers will probably get more support from this book than they will get from some of the medical profession, since dementia is one of those ailments that they don't know too much about and hence will tend to run a mile from.

(Author: Dr. Phil Hammond)
This is the sequel to the above book.

You'll get over it - The rage of bereavement
(Author: Virginia Ironside)
This is another book that does not talk in wishy-washy euphemisms. The spur that prompted its author to write it was the death of her father. It was 18 months after his death when she began the book and 18 months later when it was completed. At the end of the book she comments that here she is, three years later, and the feelings are still the same. Death teaches you how to come to terms with the thing, but the feelings remain the same.

The Rights of the Dying
(Author: David Kessler)
The Nurse Practitioner David Kessler, whose mentor was Dr. Elisabeth Kübler-Ross, was writing this first book when Dr. Ross was writing her last; titled "The Wheel of Life". When first published in America, "The Rights of the Dying" was titled "The Needs of the Dying".

On Children and Death
(Author: Dr. Elisabeth Kübler-Ross)

The Wheel of Life
(Author: Dr. Elisabeth Kübler-Ross)

On Grief and Grieving
(Authors: Dr. Elisabeth Kübler-Ross & David Kessler)
The second book joint authored by them and like all similar material is totally readable. Dr. Ross decided that the title should be as it is, since she considered it an appropriate ending to and a reflection of her life's work. She also knew within herself that it was her time.

Living, Loving and Healing
(Author:Dr. Bernie Siegel)
This American Doctor, whose patients never called him anything other than "Bernie", was a Doctor who without a doubt was light years ahead of the Victoriana "God on a pedestal" brigade.

Matron Knows Best
(Author:Joan Woodcock)
An excellent book that exposes the degrading effect on the Nursing Profession which has been caused by the despicable mentality of Political Correctness.

A book that I have just started to read, but considering the praise that it was accorded, I know that it will be a worthwhile and interesting read. It is considered to be a well-researched exposé.

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Iain R. Stewart, Ex-Carer


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